How to Support Someone with Psychogenic Non-Epileptic Seizures

Psychogenic non-epileptic seizures (PNES) are episodes that resemble epileptic seizures but are not caused by electrical disruption in the brain. Supporting someone with PNES can be challenging, but your understanding and compassion can make a significant impact on their well-being. Here are several ways to help.

1. Educate Yourself

Understanding PNES is the first step in providing support. Research the condition to learn about the triggers, symptoms, and the difference between PNES and epileptic seizures. This knowledge will equip you to offer informed support and counter any misconceptions about the disorder.

2. Be Patient and Understanding

Individuals experiencing PNES often face emotional and psychological challenges. Be patient and understanding during episodes, and avoid expressing frustration or confusion. Remember that their experience is real, and your empathy can help them feel safe and supported.

3. Stay Calm During an Episode

When someone has a PNES episode, your calm demeanor can be reassuring. Ensure the environment is safe, remove any hazardous objects, and gently guide them to a comfortable space if possible. Speak to them in a soothing voice and let them know you’re there to help.

4. Avoid Restraint

Unlike epileptic seizures, restraining someone during a PNES episode is not recommended. This can potentially escalate the situation or lead to injury. Instead, provide a safe space and wait for the episode to pass, offering comfort and reassurance once they regain composure.

5. Encourage Proper Medical Support

Encourage your loved one to seek professional help from doctors and therapists who specialize in PNES. Offer to assist them in finding resources, attending appointments, or participating in therapy sessions. This can help them feel more supported in their journey toward management and recovery.

6. Create a Supportive Environment

Foster an atmosphere where your loved one feels comfortable discussing their feelings and fears related to PNES. Encourage open dialogue, and listen actively without judgment. Establishing a supportive environment can make a significant difference in their emotional health.

7. Help Identify Triggers

Many individuals with PNES have specific triggers that can provoke episodes. Help them keep a journal to track events, emotions, and situations leading up to episodes. Recognizing these patterns can assist in developing strategies to cope with triggers and reduce the frequency of episodes.

8. Promote Healthy Coping Mechanisms

Encourage your loved one to explore relaxation techniques, such as meditation, yoga, or deep-breathing exercises. These practices can help manage stress and anxiety, which are often linked to PNES. Being involved in such activities together can also strengthen your bond.

9. Be Mindful of Language

Using respectful and sensitive language is essential when discussing PNES. Avoid labeling or minimizing their experiences. Instead, focus on supporting them and validating their feelings, making it clear that you understand their struggles without being dismissive.

10. Maintain Your Own Well-Being

Supporting someone with PNES can be emotionally taxing. Ensure you take care of your mental and physical health. Seek support from friends, family, or professionals if needed, and remember that your well-being is crucial for being an effective support system.

By educating yourself, staying calm, and fostering open communication, you can play an essential role in supporting someone with psychogenic non-epileptic seizures. Your compassion and understanding can help them navigate their challenges more effectively.